Search found 50 matches

by mikegabriel
Fri Jan 12, 2007 2:15 pm
Forum: Existing protocols
Topic: Metronomic Temozolomide
Replies: 17
Views: 42775

Metronomic Temozolomide

Hi everyone, sorry I have been away from this bulletin board for a while. All well my end (fingers crossed for results of latest 3 monthly MRI yesterday!). I am considering switching to daily TMZ. Does anybody have any advice, especially as to the appropriate dosage. Currently I am on the 14/14 prot...
by mikegabriel
Sun Mar 05, 2006 10:53 am
Forum: General treatment discussion
Topic: Possbile regrowth or Necrosis after only 6 weeks
Replies: 2
Views: 4187

Possible regrowth

While I am unable to help re Glaidial Wafers, I presume that the Onc will want o continue with chemo at the same time. If they want to continue with TMZ you could ask hem to consider an alternative Protocol such as one week on one week off or 14 days on 14 days off. I understand these Protocols appe...
by mikegabriel
Tue Feb 07, 2006 9:56 am
Forum: General treatment discussion
Topic: How to source melatonin
Replies: 3
Views: 5100

Ross you can get high dose Melatonin from the States, including the Life Extnsion Foundation. Mike The non-presciption Melatonin, otherwise generally known as homeopathic Melatonin, is next to useless - it is far too weak. It is generally sold accross the counter as 6X, meaning one part melatonin, 1...
by mikegabriel
Mon Jan 23, 2006 11:20 am
Forum: General treatment discussion
Topic: What to do? Best option? Please help!
Replies: 3
Views: 5425

Chris contact Dr Henry Friedman at Duke University Hospital and seek his advice about options. If you email me direct I will send you his email address.

Mike Gabriel
by mikegabriel
Mon Jan 23, 2006 11:16 am
Forum: General treatment discussion
Topic: side effects of temodar
Replies: 8
Views: 20546

Temodar side effects

Hi, the Temodar protocol your Dad is on is often called 5/23 or sometimes 5/28. I was on that protocol at 250mg per day (I am 5'3 in thick socks and 115 pounds) but have switched to a 14/14 protocol at 100mg per day as the side effects are less. Also on the 5/23 protocol, the impact on my blood coun...
by mikegabriel
Mon Jan 23, 2006 11:06 am
Forum: General treatment discussion
Topic: hearing music and tasting a metalic taste
Replies: 2
Views: 3944

Hearing music and metalic tastes

Hi, as soon as I read the headline to your post I thought seizure. While I have only had one (at night) due to taking the wrong medication, I have asked for any signs that one is about to occur so that I can take action, specially when driving. The two things I remember being warned to look for were...
by mikegabriel
Mon Jan 23, 2006 11:02 am
Forum: General treatment discussion
Topic: Help and hope... Ruta 6 ?
Replies: 1
Views: 5255

Ruta

Jan, have a look at this Yahoo Ruta ste - I have been watching this site for some time. Based on my readings Ruta 6 indeed shows promise. One thing I like about it is that Dr Banjeri does not try and sell Ruta, and the participants on the site mention several places where you can obtain Ruta 6 and C...
by mikegabriel
Fri Dec 09, 2005 1:18 pm
Forum: General treatment discussion
Topic: Ruta 6 and Calphosphate 3
Replies: 4
Views: 16172

Ruta 6 and Calphosphate 3

Does anyone have a view as to whether it is safe to take Ruta 6 and Calphosphate 3 while taking Temozolomide, I am worried it might interfere with the effectiveness of the TMZ.
Mike Gabriel
by mikegabriel
Thu Dec 08, 2005 8:24 am
Forum: Trial data, research, and reports
Topic: Promising possible treatment
Replies: 0
Views: 2532

Promising possible treatment

The link is to some promising research. Their is hope Guys and Gals, scientists are working feverishly to save us.
Mike
http://dx.doi.org/10.1371/journal.pmed.0030006
by mikegabriel
Fri Dec 02, 2005 3:06 pm
Forum: Trial data, research, and reports
Topic: Cell death induction by betulinic acid, ceramide and TRAIL
Replies: 0
Views: 2326

Cell death induction by betulinic acid, ceramide and TRAIL

Hi everyone, just had this sent to me by Jacob Schor. Jacob also suggested I check out chaga mushrooms which grow only on birch trees. Mike Acta Neurochir (Wien). 2004 Jul;146(7):721-9. Epub 2004 May 21. Related Articles, Links Cell death induction by betulinic acid, ceramide and TRAIL in primary gl...
by mikegabriel
Fri Nov 25, 2005 7:41 am
Forum: General treatment discussion
Topic: Low neutrophils
Replies: 4
Views: 6081

Re: low wbc

Do I ask my oncologist about Neulasta or my GP? Mike Hi Mike, As Ross mentioned Neulasta worked very well for Don. He had a shot over 3 yeras ago and has not needed it since the other immune stimulants I mentioned earlier. So hopefully it is possible to try and prevent. Don's now on round 38 and the...
by mikegabriel
Wed Nov 23, 2005 5:25 pm
Forum: General treatment discussion
Topic: Low neutrophils
Replies: 4
Views: 6081

Low neutrophils

I had my last high dose 5 day Temozolomide treatment in early October and my neutrophils continue to fall. Currently 0.84, does any one have any thoughts, concerns, or suggestions.
Thanks Mike
by mikegabriel
Sat Nov 19, 2005 8:42 am
Forum: General treatment discussion
Topic: My Husband, Paul
Replies: 4
Views: 6236

Re: My Husband, Paul

Sue, sorry to hear that your husband has had surgery for a GBM. I had my op on 31/12/04 and am still thriving with clear scans and so there is hope for Paul. I also had TMZ with my radiotherapy, as did a friend I met in radiotherapy who had her op 1/1/05. Jen is also thriving. Interestingly Jen and ...
by mikegabriel
Sat Nov 19, 2005 8:26 am
Forum: General treatment discussion
Topic: Help needed parted 2
Replies: 15
Views: 15613

Website/Dirk

Dirk, I had a GBM diagnosed late December 2004, with surgery New Year's Eve. I am also following the Ben Williams philosphy. My neutrophils have been hit hard by the 5 day protocol (have had five rounds) and am about to start on a 14/14 day protocol at 100mg. In addition, I take 400mg celebrex, 800m...
by mikegabriel
Wed Nov 09, 2005 11:44 pm
Forum: General treatment discussion
Topic: Help needed parted 2
Replies: 15
Views: 15613

Glad to help

Chris, this site exists thanks to Ross. This site along with another OZBrain Tumour constitutes the meeting place for a number of us on this unfortunate journey, a place to support each other, share experiences and learnings, along with information. Welcome to our band of brothers and sisters Thank ...