Brain Tumour Survivor

Its a bit scary getting an operation on your head but hopefully your mother won't have any problems. I had a menigioma removed in 2008 but it wasn't in the frontal lobe. Mine was in the posterior fossa, the tumor was about the size of a golf ball and it was removed without any issues. I am not a sur...

Hi Mez, Sorry for the delay in answering. I think all experiences are different but I am 3 years post-op in June, and don't have any side affects that I can point at - I try to convince people that I was smarter before the "brain surgery" but generally they don't buy it. I had an awful hea...

G'day Mez, Sorry to hear about your partners diagnosis, it is fairly scary being a tumour even if it is benign. I had a benign meningioma removed by Dr Teo 3 years ago and am really quite happy with the results. At the time, I made a choice between Dr Teo, a surgeon in Brisbane and having stereotact...

I had my tumour removed by Charlie last year and it didn't cost me anywhere near $200,000, more like 1/10th of that! I was told he charges the AMA scheduled fee for the procedure, not the Medicare scheduled fee. On top of his costs, there are also hospital charges but my private health insurance cov...

I'm so glad to hear that things went well for Daniel. I was getting worried having not heard anything after the 8th but was hoping it was the usual post operation stuff. It is a fairly significant bit of surgery and it sounds like Daniel is recovering well. Lets hope things just continue to get bett...

Hi Mumoftwo, I'm sorry to hear about your son. It seems so dreadfully unfair when anyone gets a tumour let alone a child. I can't begin to imagine the stress you must feel having to make such an awful decision. What did Teo have to say about having radiation treatment? I know when Teo saw me, he was...

Hi Sue, Sorry to hear about your nephews condition, tumours are horrible things to have. I had surgery with Charlie Teo in June this year and came out very well. I saw a neurosurgeon and radio oncologist in Brisbane and a radio oncologist in Sydney as well as Teo. I wasn't given percentages as far a...

Hi Rachel, I'm also in Brisbane and had a benign meningioma removed by Charlie Teo. I know that isn't the situation in your father in law's case given his prognosis. However, I wasn't particularly comfortable with a lump the size of a golf ball growing in my head. It was growing in the skull base an...

Hi Mary, I can't answer some of your questions because I just don't know. I thought the facial cranial nerve was the 7th in any case Brisbane specialists said that they tumour appeard to be coming out of the jugular foramen though to me it looked like a black and white ink blot. My comments are in r...

The perspective wasn't all that different from the neurosurgeon that I saw in Brisbane other than offering an opinion on what was best for me! In Brisbane, when I saw the Neurosurgeon, he said I really have two options; one is for surgery, the other is for sterotactic radiation. Watching was ruled o...

Well I am now 9 days post op and the only thing I seem to have is an ongoing headache. Charlie Teo managed to get the whole tumour out without any nerve damage. My right ear feels as if it is popped like when you go up in an aeroplane but it felt like that just before the operation. I was told I cou...

Thanks for the replies. I am completely realistic on my possible outcomes.I had actually found a lot of Internet material on radio surgery. Some of it is convincing, especially the University of Pittsburgh acoustic neuroma information. However, Dr Teo did make the point that to alter the DNA on the ...

Hi all, There are some pretty good stories on the board. A good resources when you are going through the crap associated with a brain tumour! I have been diagnosed with a 2.3x2.8 cm tumour in the skull base in cerebellopontine (can't guarantee the spelling of that) angle region that all doctors beli...