Brain Tumour Survivor

Michael, I am so sorry to hear of Heather's passing. No words will ever do the unbearable pain you are feeling justice. I know as difficult as it was, it gave me peace to know that I was with Raymond until the end as well. I was not able to post much about it, it was all a bit raw at the time. Think...

All the best Micheal. I looked after Raymond at home for as long as I could... physically, it was very demanding, he weighed 130 kgs at one time there. We were referred to the local palliative care hospital several months before he passed, but he refused to discuss palliative care. However, he was f...

Go get em Morpheus! Cycle 5 sounds great.... soon Cycle 6?

So happy for you Stacy, what an awesome start to the new year!

Michael A wrote:great health to all.
Michael

Back at you and Heather as well. Thinking of you. Amanda

Some say damn the statistics and I agree to a certain extent, but I am still very scared. Thankfully I dont show this to anyone, nor tell anyone, I just have these alone feelings alone. Thanks and take care. I think most of us carers could have typed this exact same post, so you are NOT alone! It's...

Alley, I wanted to say that I've been thinking of you recently. Your story has touched me, and I hope an answer will soon be your way. If I could reach out and hug you, I would wrap my arms around you and tell you all will be ok. I can't understand life sometimes, but one day at a time, one hour at ...

Oh Alley, there are no words that can describe the utter feeling of loss, pain and grief that just washed over me as I read your post. I am so deeply sorry for your loss. The words fail me, other than to say go gently with yourself. I send you my condolensces, but know that I send them with the deep...

My husband (39, GBm4) has been treated with Avastin for the last 2 months. I think we are up to infusion number 5, with the latest MRI showing successful treatment signs. However, side effects have been worse with numerous chest infection, eye infections, ulcers, and needing blood transfusions (whic...

appreciate ur response to my query. he is seeing helen wheeler. starting temodar and avastin immediately. how bout gamma knife or focal radiotherapy. do they offer it in australia. PCV? or any other other chemo My husband has a tumour in his brain stem. We had radiation and temodal treatment to sta...

Hi Alley and Montaldi, I'm now described as a carer. I'm also a mum of two kids and work full time. My husband's condition has deteriorated a lot since xmas day. In the last couple of weeks, we've had the house modified with rails, wheel chair ramp, shower heads changed and now a wheelchair and wal...

Of course none of us know what has been the start of our brain tumour "journey", but does anyone hear actually feel (scientifically or not) that their brain tumour is linked to mobile phone use? My husband has lived on his mobile for the last 12 years. As a field officer for his job, he wo...

I am sorry that you had an argument. It's never nice to argue, and certainly not when faced with the problems we all are. I guess from my post, I wanted to point out to you also the need for you to get as much help as you can (easier said than done) so that you are best able to meet all the demands ...

Every MRI is such a dreaded experience. I am glad you got such good news, best Christmas present of all! That, and of course to be with all your loved ones. Happy times, enjoy this Christmas :)

To be completely honest, I had to try a little bit of "tough love". I love my husband to bits, we've been together for 12 years, all of them fabulous years. Physically, mentally he was a very tough man (with years of martial arts training behind him - 2nd dan black belt) but he was bottlin...