Search found 47 matches

by hugsnkisses
Mon Jan 10, 2011 7:35 am
Forum: Personal stories
Topic: For those who were following my beautiful sister's story.
Replies: 8
Views: 12934

Hi April, You must feel like you are on a rollercoaster. I really feel for all your family especially Tess. As Ken said...you go to a surgeon and they suggest surgery, an oncologist and they suggest chemo.... Doctors seem to only treat to the level of their speciality and it is very hard to find som...
by hugsnkisses
Sat Oct 09, 2010 12:57 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 95170

Hi Alley, life is so unfair at times....been through my fair share as well, like others on this site. Hopefully the autopsy will reveal some reason. As for your girlfriend, you are there for each other. Support is all you can give. Can't believe what you are going through at the moment. Things just ...
by hugsnkisses
Sat Sep 25, 2010 10:53 am
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 95170

Hi Alley, So shocked. What happened? There is nothing I or anyone else can say to make this any better for you, just know we are all thinking of you and if you ever need a friendly ear....well you know the rest. I have three friends that lost children, all suddenly taken away, one just four weeks ag...
by hugsnkisses
Tue Aug 03, 2010 11:30 pm
Forum: Personal stories
Topic: For those who were following my beautiful sister's story.
Replies: 8
Views: 12934

Hi. Been waiting to hear how Tess got on. SO happy for you. Hopefully everything from now will be good news. Keep us posted. I am thinking of you all and sending my very best wishes to you and your family. You did the right thing!!!!! xx
by hugsnkisses
Wed Jul 07, 2010 9:01 pm
Forum: Personal stories
Topic: Contraversial treatment for low grade (II) astrocytoma
Replies: 24
Views: 22228

Hi,

Just wanted to let you know I was thinking of you and Tess today. I hope everything has gone extremely well for her and today marks the start of her full recovery.

Sue xx
by hugsnkisses
Tue Jun 22, 2010 11:57 am
Forum: Personal stories
Topic: Contraversial treatment for low grade (II) astrocytoma
Replies: 24
Views: 22228

Better sooner than later is exactly the right attitude. This thing is growing all the time and the sooner it's out the less damage it can do. Also better to catch it at this stage than let it morph into a higher grade. I pray that Tess has a simliar outcome to Danny. You first appointment was a carb...
by hugsnkisses
Mon Jun 21, 2010 3:37 pm
Forum: Personal stories
Topic: Contraversial treatment for low grade (II) astrocytoma
Replies: 24
Views: 22228

So happy for you all. People are wonderful and things like that just go to show how many care about Tess. She is a lucky girl to have them and all of you. I don't know much about the speech part or the personality part of the brain but I would go with Charlie on this. It seems to me that if her tumo...
by hugsnkisses
Thu Jun 17, 2010 9:03 pm
Forum: Personal stories
Topic: Contraversial treatment for low grade (II) astrocytoma
Replies: 24
Views: 22228

Hi, When we saw Charlie he could have operated that very week!!! So once Tess decides, it should be fairly quick to get in, probably best. You know what it is like sitting around thinking the worst or mulling every single scenario over and over in your head. My best advice is to listen to Charlie. H...
by hugsnkisses
Mon Jun 14, 2010 3:24 am
Forum: Personal stories
Topic: Contraversial treatment for low grade (II) astrocytoma
Replies: 24
Views: 22228

Hi, I came across to read your sister's history. It seems that you guys have had a similar "merry-go-around" to us. It is such a difficult thing to make a life-changing/life-threatening decision when most of the "experts" are adamant that operating is not viable or meaningful and...
by hugsnkisses
Fri Jun 11, 2010 3:12 pm
Forum: General treatment discussion
Topic: Urgent Advice Needed
Replies: 49
Views: 47766

Hi ABL87, I cried when I read your post. I am so happy for you and your sister. It takes a lot of courage to make the leap of faith that you have done. I know, we did it too. It is so hard to go against everything the so-called experts tell you and place your faith in the one man who says he can hel...
by hugsnkisses
Thu Jun 10, 2010 4:52 pm
Forum: General treatment discussion
Topic: Urgent Advice Needed
Replies: 49
Views: 47766

Thanks Ken. It will be 2 years in September since the op so it really is great news!!! I have been looking online but find it almost impossible to locate a specialist who has brain tumour special interest. Thinking maybe Charlie can recommend someone.

Sue
by hugsnkisses
Thu Jun 10, 2010 8:38 am
Forum: General treatment discussion
Topic: Urgent Advice Needed
Replies: 49
Views: 47766

Hi Everyone,

Just letting you all know Danny had his MRI yesterday and it was all clear. Nothing had changed at all. Fanatstic result!!! Still looking for a good neuro-ophthamologist though. Any ideas?

Thanks again,

Sue
by hugsnkisses
Sat Jun 05, 2010 8:50 pm
Forum: General treatment discussion
Topic: We are on a roundabout. When can we get off?
Replies: 13
Views: 12576

Hi Roundabout, Know exactly where you are coming from. So confusing and stressful. Charlie Teo would also be my recommendation. He correctly identified and successfully removed a non-malignant intrinsic tumour in my nephew's brain stem when other specialists (both in Newcastle, where we live, and Sy...
by hugsnkisses
Wed Jun 02, 2010 8:50 pm
Forum: General treatment discussion
Topic: Urgent Advice Needed
Replies: 49
Views: 47766

Hi everyone, Yet again I am asking for help. As Danny's eyesight and turn has not improved much since the operation, my brother Peter is trying to gain an appointment with Dr Tan who saw Danny just after the op to remove the tumour. He is an neuro-opthalmic surgeon (or something like that) who handl...
by hugsnkisses
Mon May 31, 2010 11:27 pm
Forum: General treatment discussion
Topic: Urgent Advice Needed
Replies: 49
Views: 47766

Hi Sunny, Thanks for asking after Danny. He is doing remarkably well. He attends school full-time and leads a more or less normal life. He is still deaf in one ear, has slight balance problems and his eye is still turned though not as much. He has had one operation to correct the turn which was only...