Search found 17 matches

by jaytee
Sat Jan 20, 2018 10:07 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

I know this is a forum for brain tumours, but I recall how lovely you all were to me with the illness and death of my sister Pen, and I thought you wouldn't mind if I went a little off topic. Cancer strikes in many ways. My lovely wife was fortunate enough to get to go to Scotland at the end of Octo...
by jaytee
Thu Nov 06, 2014 2:08 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

Well, I got my wish. On Monday, November the third, at 1:15 PM, Pen passed away. She died peacefully at home, something made possible by the constant love and care afforded her by her two daughters, who sacrificed all their time, even though they both have young children. Also, the care of one of th...
by jaytee
Thu Sep 18, 2014 10:27 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

I wish my sister would die. No, I wish she COULD die. I hate myself for saying that, but it's true. I know that SHE wishes for the same ting, although she cannot say it. She can't say anything. The worst thing is that she is still there, behind the eyes, still cheerful. I think that is the hardest t...
by jaytee
Wed Jul 02, 2014 9:47 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

Six years ago I'd never heard of GBM IV. Then the diagnosis of my Sis, then the research to find out what this thing is, which led me here. Why? did I hope for a cure? Was I looking for hope not found anywhere else? I'm not sure that I know, but the idea that others were going through similar, well,...
by jaytee
Mon May 19, 2014 6:29 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

Ok. Three weeks nearly since surgery. Pen, as usual, was cheerful, but she came out of the op with no speech, unable to use her right arm at all. Given her tumour was in the left parietal and temporal lobes, this isn't surprising I guess. The improvement since is nothing short of astonishing, and sh...
by jaytee
Sat May 03, 2014 9:44 am
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

Pen underwent surgery (again) On Wednesday night. She deteriorated from seemingly normal to being unable to walk or talk in less then two weeks. The surgeons say the op was a success, they were able to remove "most" of the tumour. Now it's rehab and hope. Something they said has surprised me. I had ...
by jaytee
Wed Apr 23, 2014 12:59 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

Thanks Naree. Yes, I'm not sure how I would have done without this place. Pen had her MRI this morning. They didn't want to see her urgently after it, so that's good news in a way. Off to the oncologist next week. Fingers crossed. Meanwhile, I'm off to the Royal Women's with my other sister, for tes...
by jaytee
Tue Apr 22, 2014 7:01 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

It saddens me to be back here. Not because of anything I find here; I am always amazed at the strength and courage of people. I'm not sure I would be thus if I was facing the challenges that those on this forum face. No, it's because my sister, Pen, is rapidly developing the symptoms that she showed...
by jaytee
Tue Aug 20, 2013 10:27 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

Latest news. Pen went for her regular MRI last week, with the usual trepidation. She has been told she's clear, and there is NO NEED to come back!!!

MIRACLES HAPPEN!!! Never give up.
by jaytee
Thu Jun 27, 2013 4:38 am
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

I missed Hearcam's query re Pen's diet. She bought only organic veg. We all chipped in and bought her one of those super juicers which apparently extract everything worthwhile from veg. No meat, no dairy. Vegan, in fact, but the juicer, and the organic produce is what she insists is the difference. ...
by jaytee
Thu Jun 27, 2013 4:16 am
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Re: This was so fast...

I just reread my initial post. September, 2008. Is it that long? Since then our house has burned down, we've had four grandchildren, life goes on. As it does for Pen. MRIs clear and less frequent, her health is incredible ( she continues the organic, juice and vegetable diet, but now drinks a little...
by jaytee
Sun Aug 19, 2012 7:54 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

It's nearly four years ago that Pen's diagnosis came in, and I need to tell you all she's still here. MRI's are still clear, but she is having a few brain function issues; could be alzheimer's, she reckons! :D Every day she goes on is a joy.
Just wanted to share.
by jaytee
Mon Feb 28, 2011 8:21 am
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

She's still here!

I thought I'd report back that after two and a bit years, Pen is still here, and doing well. Her MRI's remain clear and her general health is good. She is now able to drive again, and has gone back to work, part time. The differences in behaviour are still noticeable, but what the hell. I don't know...
by jaytee
Thu Oct 23, 2008 5:28 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

Hello again. Maybe some good news, I'm not sure. Pen's tumour had a large cyst on it. There appears to be some evidence of a better prognosis than with non-cystic GBMIV, with longer survival time, and longer time until recurrence :?:
Anyone have any input on this?
by jaytee
Fri Oct 10, 2008 10:21 pm
Forum: Personal stories
Topic: This was so fast...
Replies: 34
Views: 44238

This was so fast...

Sorry, I haven't been back for a while. Pen's diagnosis is glioblastoma multiform IV. Radio daily for six weeks (at this point ), chemo weekly. Prognosis, well, it's bleak. Two years at the outside, less is likely, with diminished quality. But, I guess a lot of you know that. One of the hardest thin...