Search found 31 matches

by Kristalee
Wed Jan 12, 2011 7:29 pm
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

Mark is gone

My husband Mark is gone. He passed away on December 28 at 6 am. Not from his original grade 3 oligo, but from a new tumor that sprouted up after being off treatment for a few months. This tumor was inoperable. We had an MRI on August 5th. They only offered him Avastin. I asked for him to start temod...
by Kristalee
Fri May 28, 2010 12:02 am
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

Thanks Ken,

I am feeling better this morning. You always know the right words to say :)
Krista
by Kristalee
Thu May 27, 2010 11:57 am
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

hello, As far as I know VEGF is still in the clinical trial stages. There are alot of drugs in the pipeline that are similar to VEGF, that will hopefully be more conducive to long term tumor suppression. Well, this morning Mark woke me up by having a seizure, this is his 3rd one in total, last one w...
by Kristalee
Sat May 08, 2010 1:57 pm
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

Hello :) I still check this site everyday to see how things are going for you all, just stopping by to share the latest with you all Mark is going to be of ALL treatments except Keppra :O. So far his tumor is still gone, but I am really nervous about stopping all treatments. Vegf causes to much prot...
by Kristalee
Sat Oct 31, 2009 9:58 am
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

UPDATE!

Hello all! Hope all of you are doing well :) Just wanted to update you all Marks 2 month MRI.......sooo the tumor has shrunk again! this makes the third MRI in a row! Dr.Norden also stated he wouldnt be surprised if Mark is doing this well five years from now!! yeah! I feel happy and blessed! If the...
by Kristalee
Sun Sep 20, 2009 12:33 pm
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

Hi all! Just wanted to update Marks current treatment with VEGf trap. We hadn't seen tumor shrinkage before he started the VegF...Temodar seemed to keep things in control....its been a year and no tumor growth, he has at least a 50% reduction in tumor size! The tumor which was the size of an egg, ha...
by Kristalee
Sat Aug 29, 2009 11:22 pm
Forum: Personal stories
Topic: My First Birthday
Replies: 61
Views: 84504

Hi Stacy! Congrats on your first year! What a year it has been for you! I had no idea you still havent had your surgery to fix your bone-flap :(. I feel for you children, I don't know how id cope if my mom where in your shoes. I hope the doctors are at least giving them hope that they will have thei...
by Kristalee
Tue Aug 25, 2009 1:16 am
Forum: Trial data, research, and reports
Topic: New procedure uses a laser to cook and kill brain tumors
Replies: 1
Views: 1153

when is this going to become a standard? Things move soooo slow! :(
by Kristalee
Mon Aug 17, 2009 12:40 pm
Forum: General treatment discussion
Topic: Patrick Swayze smokes dope to ease pain and effects of chemo
Replies: 4
Views: 6863

to true :( There seems to be so "many" great ideas, treatments that are shown to treat cancers, its just takes such long time in getting the drugs to the patients. A "breakthrough" treatment can take what, 3-4 years to get to the public....and here in the US the big health care r...
by Kristalee
Tue Aug 11, 2009 12:21 pm
Forum: General treatment discussion
Topic: Patrick Swayze smokes dope to ease pain and effects of chemo
Replies: 4
Views: 6863

this is very interesting...........I hope more research is being done in the THC field. I read online that if cannabis was found this year, it would be hailed a miracle drug.Instead we have to rely on pharama compaines, that compete with eachother to find the next Avastin or Temodar. Maybe their gre...
by Kristalee
Tue Aug 11, 2009 12:00 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 95880

Hi Alley,
I would go for the awake surgery, they can get more tumor out that way.My Mark had MRI mapping of all of his speech and thought areas before his surgery. I wish Mark was able to the awake surgery!
Krista
by Kristalee
Thu Jul 16, 2009 10:11 am
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

Thanks ladies,
We are thinking of taking a road trip once he is on his temodar break.
Kris
by Kristalee
Mon Jul 13, 2009 11:44 am
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

Hey Wendy, hope your hanging in there. I really want to go to NZ, looks beautiful, and I am a huge flight of the concords fan :) I feel great about Mark's scan, just wondering if this is the calm before the storm. He hasn't had any change for a year, so we are hoping that is good. Take care kris
by Kristalee
Sat Jul 11, 2009 1:36 pm
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

Thanks, hope all is well with you guys :)
by Kristalee
Wed Jul 08, 2009 11:01 am
Forum: Personal stories
Topic: Hi, hubby has a Oilgoastrocytoma
Replies: 48
Views: 65789

Hi, we just got home from Dana Farber it was a LONG day we were there for 10 hours. We are both very happy! Finally his tumor looks smaller and isn't enhancing as much. We were hoping at least for a stable scan, but we are blessed with a smaller tumor as well!!!! I haven't seen Mark this happy in a ...