Search found 42 matches

by alley
Wed Mar 21, 2012 11:59 am
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Hi Romina, I totally agree it is a difficult journey being the onlooker. I too just take each day as it comes otherwise it all gets overwhelming and appears insurmountable! I hope that all goes well with Oli, and understand your anxiety with all the waiting, its a killer. It sounds like you are also...
by alley
Mon Mar 19, 2012 7:40 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Jus is now home and said that the doctor has told him that the tumour hasn't changed grade from 8yrs ago. With the new WHO classification it was always a grade 2. Hmmm, any one have any info on this new grading system? The hospital discharged him home with only 4 anticonvulsants and nil script - idi...
by alley
Sun Mar 18, 2012 6:37 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Jus made it through surgery. He's doing really well. Probably being discharged Monday. Pathology showed grade 2 astrocytoma (8 yrs ago it was grade 1) but they are fairly confident that they got it all. MRI post op showed no residual tumour. He is speaking with radiotherapy guy tomorrow but doc is f...
by alley
Tue Mar 13, 2012 7:24 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Life

So here I am back again. Since our beautiful daughter died in 2010 we have been on a roller coaster of doctors visits and bad news after bad news. After discovering that my son has a cardiac condition then had cardiac surgery, I've been diagnosed with a potentially fatal cardiac condition and lastly...
by alley
Fri Feb 25, 2011 7:12 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Thanks Kenobewan for your comments but can you give me more information on the endoscopy?
by alley
Wed Feb 23, 2011 8:09 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Well latest MRI shows tumour growing. Back again in 3 mths to have another scan and probable surgery. Doc said it is very close to Jus's speech centre - I have asked doc about an awake craniotomy and he said he does them - I think this will be J's best chance at maintaining as much speech function a...
by alley
Tue Oct 12, 2010 6:06 am
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Thankyou all so much for your kind words and thoughts. I am just taking it one step at a time.......thank god for our son otherwise we woudn't get out of bed. Still desperately searching for answers but not sure that we will get any.......will never accept it but just have to find a way to learn to ...
by alley
Fri Oct 08, 2010 6:30 pm
Forum: Personal stories
Topic: My First Birthday
Replies: 61
Views: 82500

Oh Stacy that is wonderful news. You must feel on top of the world!!!
Alley
by alley
Fri Oct 08, 2010 6:27 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Hi guys, thanks for your very supportive words. We have no answers as to why we lost our beautiful Gracie. An autopsy has been performed and the police and coroner have commenced an investigation so we are in limbo...... but nothing will bring back our precious little girl. And just to kick us whils...
by alley
Fri Sep 24, 2010 7:51 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Guys an update. Jus is fine but we have just lost our 2year 10month old daughter suddenly. Our beautiful and precious girl lost her life.....I never expected to be burying her. Jus is gutted and I have no idea how life will ever go on. Can life deal me any more blows?????? My heart is completely bro...
by alley
Thu Aug 19, 2010 7:12 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Hi all, as Kenobewan predicted there has been no change in the tumour. Nil uptake of the contrast which is excellent news so next checkup in 6mths!!
by alley
Fri Aug 06, 2010 5:20 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Hi guys, holy cow where does the time go?? Just had another MRI and get the results Tues week. can't believe that 6mths has just disappeared! But I guess on the other hand it is a good thing as J's tumour is not constantly in my thoughts all day every day anymore......It is hard to believe that he a...
by alley
Sun Jul 04, 2010 6:59 pm
Forum: Personal stories
Topic: New neurosurgeon
Replies: 5
Views: 8180

Hi Kenobewan, that is good news. Also wanted to say that I am inspired by the strength you have shown in dealing with all that has come your way. You have certainly helped me in dealing with my hubbies tumour.

Cheers Alley
by alley
Tue Jun 29, 2010 2:15 pm
Forum: Personal stories
Topic: Astrocytoma
Replies: 72
Views: 93595

Hi April, the last MRI was in Feb and no change. We are due back again early august. My time flies!! We have struggled this year personally, we have come very close to separating but it breaks my heart to think that he would go through all this on his own. He has finally acknowledged that he has som...
by alley
Wed May 26, 2010 7:25 pm
Forum: Personal stories
Topic: Contraversial treatment for low grade (II) astrocytoma
Replies: 24
Views: 21680

Hi again, thanks for the info, I most certainly will make contact with your new doc.....unfortunately we are based in Melbourne! If it was me I would still go and see Charlie, really there is nothing to lose and like Kenobewan says you don't necessarily have to go through with the surgery option. I ...