Search found 140 matches
- Sat Oct 01, 2011 10:23 am
- Forum: Personal stories
- Topic: GBM4 Sydney Dx 31/7/09
- Replies: 83
- Views: 118436
- Sat Oct 01, 2011 10:19 am
- Forum: Personal stories
- Topic: Just joined the forum but not new to the oligo!
- Replies: 2
- Views: 11406
Hi Kaylan. Welcome. I have two daughters, so I have wondered about whether there might be a genetic disposition to malignantbrain tumours. My highly regarded oncologist said outright that there was no evidence there was a genetic link (unlike some other cancers). A relative has far more chance ofcon...
- Wed Sep 07, 2011 11:53 am
- Forum: Personal stories
- Topic: GBM4 Sydney Dx 31/7/09
- Replies: 83
- Views: 118436
- Tue Sep 06, 2011 8:59 am
- Forum: Personal stories
- Topic: GBM4 Sydney Dx 31/7/09
- Replies: 83
- Views: 118436
Thiis is seriously funny
I had stopped going for early morning walks because of the chemo and the cold, but this morning at 5am, I felt good, and it wasn’t too cold, so off I went. My balance isn’t too great, and at one point as I was getting to a jog I steadied myself by holding onto a car. A second later a car pulls up ne...
- Sun Sep 04, 2011 6:47 pm
- Forum: Personal stories
- Topic: GBM4 Sydney Dx 31/7/09
- Replies: 83
- Views: 118436
Staci, How are you, good to see youve attached your name to that good looking body....although i already new that, glad to hear your doing well..Im doing fine, still migrane persists but what the heck Im ALIVE... Great to hear from you Staci. and good to hear you're well aside from the migraine.BTW ...
- Sun Sep 04, 2011 6:41 pm
- Forum: Personal stories
- Topic: GBM4 Sydney Dx 31/7/09
- Replies: 83
- Views: 118436
Hi Kelly, Thanks for sharing. Thankfully for Kevin and myself, we're at a time, where there is real hope. for GBMers. I'm very wary about giving advice or even talking too much to other GBMers, as everyone is so different. and it's not my place to comment or to give advice, which is why I just share...
- Mon Aug 01, 2011 9:15 am
- Forum: Personal stories
- Topic: GBM4 Sydney Dx 31/7/09
- Replies: 83
- Views: 118436
When doctors with distant looks and bulging eyes, Foretell a time of your demise, If you dare seek, than you will find, The answer deep within your mind. Hey come on, being a 2 year survivor of a GBM4 gives me certain rights, including the vright to write bad, teenage poetry Take care everyone. John...
- Fri Jun 17, 2011 10:25 am
- Forum: Personal stories
- Topic: Nicole
- Replies: 29
- Views: 46245
- Wed May 25, 2011 12:40 pm
- Forum: Trial data, research, and reports
- Topic: Avastin for Radiation Necrosis: Exciting Results
- Replies: 11
- Views: 16442
Avastin for Radiation Necrosis: Exciting Results
Abstract PURPOSE: To conduct a controlled trial of bevacizumab for the treatment of symptomatic radiation necrosis of the brain. METHODS AND MATERIALS: A total of 14 patients were entered into a placebo-controlled randomized double-blind study of bevacizumab for the treatment of central nervous syst...
- Tue May 24, 2011 3:43 pm
- Forum: Personal stories
- Topic: GBM4 Sydney Dx 31/7/09
- Replies: 83
- Views: 118436
- Tue May 24, 2011 3:21 pm
- Forum: Personal stories
- Topic: GBM4 Sydney Dx 31/7/09
- Replies: 83
- Views: 118436
Here's the boring stuff. Dec 15. MRI. Had a focal seizure while waiting for radio oncologist, loosing control of left arm and leg.MRI looked very nasty. Had a great Christmas though. Jan 18 MRI looked nasty, Needed to look at left arm in order to control it. Jan 21 Consulted with neurosurgeon. Said ...
- Tue May 10, 2011 9:51 am
- Forum: General treatment discussion
- Topic: Natural (non-steroidal) treatment for cerebral edema
- Replies: 9
- Views: 16140
- Thu May 05, 2011 8:51 am
- Forum: Personal stories
- Topic: GBM4 Sydney Dx 31/7/09
- Replies: 83
- Views: 118436
Minor update
I'll skip all the boring stuff. Saw my oncologist just before Easter, and she said to stop chemo (2 days into bonus cycle 9 (ie cycle 15). For the first time in a very long time I'm starting to feel human again. It's nice.Just in relation to the experimental FET scan (not PET scan), my radiation onc...
- Thu May 05, 2011 8:45 am
- Forum: General treatment discussion
- Topic: Tired of being a lab rat
- Replies: 7
- Views: 16022
- Thu May 05, 2011 8:42 am
- Forum: General treatment discussion
- Topic: Tired of being a lab rat
- Replies: 7
- Views: 16022
Kelle, I've just finished 14 cycles of Temozolomide. Before Temozolide, people with GBM4s were lucky to get 6 months. Now more than 50% make it past 18 months (The median at my local hospital Royal North Shore is 18 months rather than the often stated 14.7 months. Some live purposefully and happily ...