Search found 140 matches

by Morpheus
Sat Oct 01, 2011 10:23 am
Forum: Personal stories
Topic: GBM4 Sydney Dx 31/7/09
Replies: 83
Views: 100325

No, not true, that I was questioned by North Sydney police about car rebirthing racket. though, if you're after late model prestige car with weld seam through the middle, just DM me
by Morpheus
Sat Oct 01, 2011 10:19 am
Forum: Personal stories
Topic: Just joined the forum but not new to the oligo!
Replies: 2
Views: 9505

Hi Kaylan. Welcome. I have two daughters, so I have wondered about whether there might be a genetic disposition to malignantbrain tumours. My highly regarded oncologist said outright that there was no evidence there was a genetic link (unlike some other cancers). A relative has far more chance ofcon...
by Morpheus
Wed Sep 07, 2011 11:53 am
Forum: Personal stories
Topic: GBM4 Sydney Dx 31/7/09
Replies: 83
Views: 100325

Personally, I'm just relieved I didn't get the Rodney King treatment, that would have been hard to explain to my wife when I got home Seriously, Aussie cops are great!
by Morpheus
Tue Sep 06, 2011 8:59 am
Forum: Personal stories
Topic: GBM4 Sydney Dx 31/7/09
Replies: 83
Views: 100325

Thiis is seriously funny

I had stopped going for early morning walks because of the chemo and the cold, but this morning at 5am, I felt good, and it wasn’t too cold, so off I went. My balance isn’t too great, and at one point as I was getting to a jog I steadied myself by holding onto a car. A second later a car pulls up ne...
by Morpheus
Sun Sep 04, 2011 6:47 pm
Forum: Personal stories
Topic: GBM4 Sydney Dx 31/7/09
Replies: 83
Views: 100325

Staci, How are you, good to see youve attached your name to that good looking body....although i already new that, glad to hear your doing well..Im doing fine, still migrane persists but what the heck Im ALIVE... Great to hear from you Staci. and good to hear you're well aside from the migraine.BTW ...
by Morpheus
Sun Sep 04, 2011 6:41 pm
Forum: Personal stories
Topic: GBM4 Sydney Dx 31/7/09
Replies: 83
Views: 100325

Hi Kelly, Thanks for sharing. Thankfully for Kevin and myself, we're at a time, where there is real hope. for GBMers. I'm very wary about giving advice or even talking too much to other GBMers, as everyone is so different. and it's not my place to comment or to give advice, which is why I just share...
by Morpheus
Mon Aug 01, 2011 9:15 am
Forum: Personal stories
Topic: GBM4 Sydney Dx 31/7/09
Replies: 83
Views: 100325

When doctors with distant looks and bulging eyes, Foretell a time of your demise, If you dare seek, than you will find, The answer deep within your mind. Hey come on, being a 2 year survivor of a GBM4 gives me certain rights, including the vright to write bad, teenage poetry Take care everyone. John...
by Morpheus
Fri Jun 17, 2011 10:25 am
Forum: Personal stories
Topic: Nicole
Replies: 29
Views: 38304

How wonderful!
Always remain positive and never take what they tell you at face value, we are all unique


Amen to that!
by Morpheus
Wed May 25, 2011 12:40 pm
Forum: Trial data, research, and reports
Topic: Avastin for Radiation Necrosis: Exciting Results
Replies: 11
Views: 15411

Avastin for Radiation Necrosis: Exciting Results

Abstract PURPOSE: To conduct a controlled trial of bevacizumab for the treatment of symptomatic radiation necrosis of the brain. METHODS AND MATERIALS: A total of 14 patients were entered into a placebo-controlled randomized double-blind study of bevacizumab for the treatment of central nervous syst...
by Morpheus
Tue May 24, 2011 3:43 pm
Forum: Personal stories
Topic: GBM4 Sydney Dx 31/7/09
Replies: 83
Views: 100325

MRI 24/5/11 Both radiooncologist and neuro oncologist were very happy with the MRI. Overheard oncologist saying to colleague his scan was "brilliant". The theory at the moment is that the December 15 incident was late radiation damage arising because the residue Avastin in my blood stream ...
by Morpheus
Tue May 24, 2011 3:21 pm
Forum: Personal stories
Topic: GBM4 Sydney Dx 31/7/09
Replies: 83
Views: 100325

Here's the boring stuff. Dec 15. MRI. Had a focal seizure while waiting for radio oncologist, loosing control of left arm and leg.MRI looked very nasty. Had a great Christmas though. Jan 18 MRI looked nasty, Needed to look at left arm in order to control it. Jan 21 Consulted with neurosurgeon. Said ...
by Morpheus
Tue May 10, 2011 9:51 am
Forum: General treatment discussion
Topic: Natural (non-steroidal) treatment for cerebral edema
Replies: 9
Views: 15151

Way to go! Drugs are nasty, I know, but they do stuff.
by Morpheus
Thu May 05, 2011 8:51 am
Forum: Personal stories
Topic: GBM4 Sydney Dx 31/7/09
Replies: 83
Views: 100325

Minor update

I'll skip all the boring stuff. Saw my oncologist just before Easter, and she said to stop chemo (2 days into bonus cycle 9 (ie cycle 15). For the first time in a very long time I'm starting to feel human again. It's nice.Just in relation to the experimental FET scan (not PET scan), my radiation onc...
by Morpheus
Thu May 05, 2011 8:45 am
Forum: General treatment discussion
Topic: Tired of being a lab rat
Replies: 7
Views: 12684

Also, it may not make you sick - it made me a Zombie, but I worked throughout. A two year survivor I know says it just makes things a little less vivid. I would respectfully suggest that you don't jump to conclusions.
by Morpheus
Thu May 05, 2011 8:42 am
Forum: General treatment discussion
Topic: Tired of being a lab rat
Replies: 7
Views: 12684

Kelle, I've just finished 14 cycles of Temozolomide. Before Temozolide, people with GBM4s were lucky to get 6 months. Now more than 50% make it past 18 months (The median at my local hospital Royal North Shore is 18 months rather than the often stated 14.7 months. Some live purposefully and happily ...