Search found 360 matches

by Mary
Sun Dec 05, 2010 3:30 am
Forum: General treatment discussion
Topic: Natural (non-steroidal) treatment for cerebral edema
Replies: 9
Views: 16070

NSAIDs

Look up NSAIDs (Non-steroidal anti-inflammatory drugs). I think you'll find iburophen is one. I also recall reading some time ago that Cox-II inhibitors are also helpful (such as Celebrex).

Both are readily available anti-inflammatory drugs. You could try them and see if they help.
by Mary
Fri Oct 29, 2010 7:37 am
Forum: General treatment discussion
Topic: Still sore after surgery
Replies: 11
Views: 11185

V. funny

Morpheus, did they use a male or female brain in the transplant? I hear that male brains are more expensive because they are generally relatively unused.
by Mary
Sat Oct 23, 2010 9:02 am
Forum: General treatment discussion
Topic: Caring for someone with cancer
Replies: 14
Views: 23086

Caring for someone with cancer

We've had a number of family members contact this site when their loved one is diagnosed with a brain tumour. It is clearly a very distressing and confusing time for everyone. In particular for those who become carers. Caring for someone with cancer presents it own hardships and the role and importa...
by Mary
Sat Oct 23, 2010 1:03 am
Forum: General treatment discussion
Topic: Avastin Any successful users out there?
Replies: 41
Views: 60068

It's not easy!

Michael, you're certainly not a jerk for feeling any of those things. None of us are well prepared to deal with issues like this and they effect everyone in the family one way or the other. Life is turned upside-down. You're human, trying to be strong for her and be there for her while having to dea...
by Mary
Fri Oct 22, 2010 5:40 pm
Forum: General treatment discussion
Topic: Still sore after surgery
Replies: 11
Views: 11185

You can get a blood test done to see if you're Vitamin D deficient. While I don't believe that a good diet, exercise and vitamins can cure cancer it is important to keep the system as healthy as possible - ie. it won't hurt. Re: Vitamins. I think you're body will only absorb so much Vitamins. Any ex...
by Mary
Wed Oct 13, 2010 2:42 pm
Forum: General treatment discussion
Topic: Avastin Any successful users out there?
Replies: 41
Views: 60068

Chin up

Michael, pleased to hear your wife is stable on this latest treatment. It is when something like this happens that all other problems become so miniscule and the hope of getting back to a stage where relatively trivial annoyances in life is all that you have to deal with (some people don't know how ...
by Mary
Tue Oct 12, 2010 5:44 pm
Forum: General treatment discussion
Topic: Avastin Any successful users out there?
Replies: 41
Views: 60068

Research findings to support your wife's own experience.

Michael, Your wife’s story reminded me of some articles I’d posted a while back (see copied below) . While those who respond to Temodal will sing it’s praises, brain tumour treatments are not a “one size fits all solution” – even though doctor’s use the “evidence-based” argument (ie. x % of people r...
by Mary
Tue Oct 12, 2010 5:16 pm
Forum: General treatment discussion
Topic: MacKillop cancer prayers 'betray a false thinking'
Replies: 0
Views: 7265

MacKillop cancer prayers 'betray a false thinking'

MacKillop cancer prayers 'betray a false thinking' http://www.smh.com.au/national/mackillop-cancer-prayers-betray-a-false-thinking-20101011-16g2u.html Amy Corderoy October 12, 2010 THE celebration of Mary MacKillop's miracle cancer cures is a worrying example of the lack of scientific literacy in t...
by Mary
Tue Oct 05, 2010 9:01 pm
Forum: General treatment discussion
Topic: confusion and pressure from conflicting advice
Replies: 24
Views: 26002

Good on Daniel's Aunty for contacting this forum

Yes Ross, it is sometimes the family (incl extended family members) who contact the site for help and advice and in this case it was "hugs and kisses" who posted under the title of "urgent advice needed". So anyone reading this post should start with that one first to get a bette...
by Mary
Thu Aug 26, 2010 11:37 pm
Forum: General treatment discussion
Topic: new to the forum
Replies: 3
Views: 7440

Best wishes

Good luck and we hope to hear continuing good news of no futher growth or recurrence.
by Mary
Mon Jul 05, 2010 6:03 pm
Forum: General treatment discussion
Topic: Urgent help needed- Astrocytoma
Replies: 2
Views: 9693

How does TomoTherapy differ from stereotactic radiotherapy?

Sorry to hear about your diagnosis. I hadn't heard anything about "Tomotherapy" so looked it up. I'm unclear as to how it varies to the more well known "stereotactic radiotherapy" which is targetted therapy guided by MRI and computer to target the tumour only etc). Stereotactic r...
by Mary
Wed Jun 30, 2010 4:56 am
Forum: General treatment discussion
Topic: New drug combination may be useful for treating glioma
Replies: 1
Views: 11986

New drug combination may be useful for treating glioma

This sounds promising but no mention of clinical trials in humans.........(might be one to watch)............ Sorafenib Kills Malignant Glioma Cells by Blocking Vital Cell Survival Pathway June 1, 2010 Researchers have identified a cell-signaling pathway in malignant glioma (a type of brain cancer) ...
by Mary
Wed Jun 30, 2010 4:48 am
Forum: General treatment discussion
Topic: DOCTORS have begun charging patients up to $50 in late fees
Replies: 0
Views: 7524

DOCTORS have begun charging patients up to $50 in late fees

DOCTORS have begun charging patients a fee of up to $50 for being just 10 minutes late for appointments. June 30, 2010 http://www.heraldsun.com.au/news/doctors-charging-up-to-50-for-being-just-10-minutes-late-for-appointments/story-e6frf7jo-1225885905831 Consumer groups are accusing the profession ...
by Mary
Wed Jun 16, 2010 3:58 pm
Forum: General treatment discussion
Topic: Post-radiation steroid taper & pseudoprogression help
Replies: 2
Views: 9395

Catch 22

Radiation can caused swelling to the brain, hence steroids are given as an anti-inflammatory. Steroids can actually encourage growth of the glioma. Catch 22? Personally I’m not a fan of either radiation or steroids (Dexamethasone or Prednisolone or similar Corticosteroids). Radiation can cause swell...
by Mary
Mon May 24, 2010 11:34 pm
Forum: General treatment discussion
Topic: We are on a roundabout. When can we get off?
Replies: 13
Views: 12576

A testing time but good to hear it's not malignant.

I can understand why all the tests and doctor's appointments and different diagnosis (possibilities) would have your head spinning together with a sense of panic that goes with any diagnosis or any neurological condition - incl possibly brain tumour. I suppose it's some consolation that they've at l...