What to do now?

General discussion including use and side effects of various medication/therapies, and "what do I do now?"
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LCAS
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Joined: Fri Oct 22, 2010 3:07 am
Location: Norway

What to do now?

Post by LCAS » Wed Oct 27, 2010 7:34 pm

Hi- I am 53 with a grade IV tumor located in the frontal lobes, in the middle. I cannot be operated on to remove the tumor, so the stats are pretty grim.
But I am doing all I can to help my immune system participate in the battle against the tumour. I have just completed 6 weeks with radiation therapy and 140mg Temodal daily.

Now I get a 4 week rest. The doctors told me to reduce my intake of anti-oxidants during the last 4 weeks of treatment (that was when they learned that I was taking them), saying that they will help both the normal cells and the cancer cells to be repaired. I would like to increasy my intake of anti-oxidants again, and am looking for advise and documentation on when it is best to start.

I was taking Aloe Vera extract and a berry extract called Medox (from Norway, where I live now). I have continued drinking green tea throughout my treatment process.

Do you know of any studies that have looked into this? Any advice or experience?

Thanks
Bob

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kenobewan
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Location: Australia

Post by kenobewan » Thu Oct 28, 2010 9:18 am

Welcome to the site!

I don't know whether you have ever seen the TV show "Blackadder". In the second series, he decides to sail around the world. He is advised the that the world's foremost cartographers has created a map for him (it is blank) and would he kindly fill it in as he goes :).

The reality of the situation is cancer patients often have to fill in the blanks as they go. Most specialists seem unable or unwilling to give advice on these areas. Their position seems to be it is not scientific or merely a placebo.

From your other post I see that you have already read two of the best books available. Its sounds like you already have access to good information and I congratulate you on getting up to speed so quickly.

All I can say is what I'm trying to achieve - preventing recurrence. Its not widely known that if you make it past the median for PFS there is a long tail, so there is hope. Through nutrition, exercise and lifestyle, I am no longer receiving treatment, I hope to achieve this.

Sounds like you will probably be aware of the things I do, but I'll mention them in case. I eat 9-11 servings of veges and fruit daily, mostly veges. I eat tumeric and pepper with most meals. I take 5000IU vitamin D daily and get 15mins of sunshine when fine. I eat lots of garlic. I'm addicted to exercise so my weight and fitness have never been a problem.

Rather than make a bucket list I prefer the quiet daily routine to keep stress level low. I have a low information diet and watch no TV. I limit my supplements to a maximum of 12 - more is not necessarily better. I focus on being and enjoy the simple things in life.

If you haven't looked at the research section yet, I'd recommend it. Its great that you have a positive attitude. If most cancers can be prevented, then you are giving yourself the best chance.

I wish you well!

Morpheus
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Location: Sydney, Australia

Post by Morpheus » Fri Oct 29, 2010 7:15 am

The reality of the situation is cancer patients often have to fill in the blanks as they go.

That's so true. I find myself constantly reviewing my daily routine/diet/practices trying to optimise my routine depending on where I am.
Like Ken, I'm against bucket lists - everyone I've come across who has had one died as soon as they cross off that last item. Instead, I do the things I love most every day, and that is to love and to care for my family (which by the grace of God I can do). Like Ken, I manage stress through meditation, exercise, getting enough sleep, etc

LightofDay
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Post by LightofDay » Wed Nov 03, 2010 1:13 am

During my whole ordeal, I simply focused on keeping my vitamin in-take up, simply consuming food and moving around whenever possible. I haven't heard anything about the importance of taking/not taking antioxidants, but I wouldn't think it would hinder the healing process. However, one can never be too sure.

As I mentioned before, I didn't focus on one particular method or several methods of healing. I stuck with the basics. Eat right, exercise (when you can and HOWEVER you can) and take your vitamins. That's all I was advised to do and that's what I did.

traceya
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Re: What to do now?

Post by traceya » Wed Aug 14, 2013 6:50 pm

I have recently just started chemo and radiotherapy and am finding my motivation very low I read so many positive stories on this site but am finding it to stay positive. Any tips welcome. I am thinking I may ended to set some goals. My mobility I'd not great and I am rapidly loosing fitness so I am thinking this could be something I could do for myself. Has anyone had success with this.

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kenobewan
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Location: Australia

Re: What to do now?

Post by kenobewan » Thu Nov 07, 2013 3:49 pm

Hi Bob,

Hope you travelling well. Either way we would appreciate an update.

Thanks Ken.

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