Brain Tumour Survivor

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PostPosted: Tue May 03, 2011 9:16 am 
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Joined: Wed Mar 02, 2011 7:56 pm
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Hi.
Has anyone tried accessing their super to pay for brain tumor treatment? I have a LGG and plan on having a resection operation by Charlie Teo who doesn't come cheap.
I was considering trying to access my super to pay for the operation.

Thanks.
Billy.


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PostPosted: Sat May 14, 2011 4:55 pm 
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Joined: Sun Mar 20, 2011 7:15 am
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yes I did try .. very very stressfull... I gave up...!!!
I have gone through so much stress dealing with the finding of my large accoustic neuroma , surgery, then now recovery..
and APRA (the body regulator who assess and have the say to approve your super release) took 1 month since my applicaiton submission and they said my document wasnt complete.. they need letters from 2 medical proffesionals stating why we went to private instead of taking public free service.. and the letters are to state our condition is chronic illness...

very very stressfull situation..., I am still coping with my recovery ( I am having bell's palsy after the surgery.. wasnt talking properly ) and just couldnt deal with the stress..so I am withdrawing my application.

It is ridicilious... the govt rather you owe money and pay a loan than releasing your own money to lift your burden ..

Have you done yours by Teo?


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PostPosted: Tue May 17, 2011 1:29 pm 
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Hi. I’m sorry to hear your experience has been so stressful. I hope your recovery is going better now.
I haven't had any operation yet - I was assuming I could access the funds up-front before any operation.
I have some time before deciding what do as I have no symptoms and my tumor is not growing / growing very slowly.
At the moment I’m leaning towards getting Dr. Teo to operate asap with the hope that this prolongs my overall survival.

Although your experience with APRA was not a good one, I think I may still pursue this avenue as the operation costs are high and I feel I have reasonable grounds for accessing the money.

Thanks for the reply.

Billy.


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PostPosted: Mon May 30, 2011 3:49 pm 
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Hi Billy ,

I am sorry I didnt realize your tumour wasnt the same like mine.. I wish you the very best of luck for your surgery ..

my tips in dealing with APRA makesure both your GP and specialist states exactly the same word of statement requested by APRA.

All the best !


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