Hello all :)
my name is Krista, I'm also on another BT forum, but thought I'd join this one as well.
My 28 year old husbad was dx with a grade 2 oilgoastrocytoma. I say grade 2 because the biopsy came back as grade 2. When the tumor was removed they found a very small area with grade 3 cells.They say they removed those cells.So its more of a mixed bag:).
He had a seizure a few days before our honeymoon, that was all the symptoms he had. The tumor was almost completely removed, it was about the size of a egg. It looked like an egg as well, very well defined. They said it was calicified and very slow growing and he could have had it for up to ten years.
He had a scan a few days ago before he started radiation and chemo, the doctor couldn't see the tumor. Which is hopefully a good thing! After surgery about the size of a grape was seen, so I am hoping they got more than they thought.
He has had no seizures since the first one,and is on keppra.
It's hard to have hope. When we first started this process, I think it seemed he would have surgery, have the tumor removed, and then get on with our lives. Now its seems like, how much time do I have left with him :cry:
I'm so sorry for anyone else having to go through this, I never thought this would happen to anyone I know, especially the husband I love so much.
krista
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