GBM4 Sydney Dx 31/7/09

Personal stories from survivors
stacy
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Posts: 138
Joined: Mon Sep 15, 2008 11:43 am
Location: Elands NSW

Post by stacy » Tue Aug 16, 2011 5:49 am

Hi John,
How are you, good to see youve attached your name to that good looking body....although i already new that, glad to hear your doing well..Im doing fine, still migrane persists but what the heck Im ALIVE...

Regards Stacy

Morpheus
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Posts: 140
Joined: Mon Aug 17, 2009 12:43 pm
Location: Sydney, Australia

Post by Morpheus » Sun Sep 04, 2011 6:41 pm

Hi Kelly,

Thanks for sharing. Thankfully for Kevin and myself, we're at a time, where there is real hope. for GBMers. I'm very wary about giving advice or even talking too much to other GBMers, as everyone is so different. and it's not my place to comment or to give advice, which is why I just share my story, hoping maybe that it will help someone. I tought a weird poem couldn't hurt, as everyone can read into it what they want. Please be very careful about taking advice from here or anywhere else. If I took to heart the lunatic advice I received here , I'd long gone. Some people with lower grade brain tumours don't quite understand that aGBM4 is in aa class of it's own. Make your own decisions based on information from a a cvariety of reliable sources.

I've had Doctors with bulging eyes for the past 25 months. Sometimes tose eyes were bulging with horror, and sometimes with delight. At the moment they're at the WTF stage. I'm happy for my survival to be a mystery, I'm just grateful and humbled to be alive and functioning weell. grateful and humble. Whatever is going on, it feels awfully like being alive. I don't need to know much more beyond that,I do get a lot from other GBM4res sharing their stories. It's good to knnow there are other optimisic people who think and act as though this thing can not only ne faught, but beaten.
Last edited by Morpheus on Sun Sep 04, 2011 7:12 pm, edited 1 time in total.

Morpheus
Registered User
Posts: 140
Joined: Mon Aug 17, 2009 12:43 pm
Location: Sydney, Australia

Post by Morpheus » Sun Sep 04, 2011 6:47 pm

Staci,

How are you, good to see youve attached your name to that good looking body....although i already new that, glad to hear your doing well..Im doing fine, still migrane persists but what the heck Im ALIVE...


Great to hear from you Staci. and good to hear you're well aside from the migraine.BTW I had low level headache when the temperature dropped in May, and of course I started to think OMG, but I started drinking water and it went away

In the past few months I've started to realise that I am who I am, and I'mpround of who I am, even if I have a partly clacified mass in my head, (quote from PET of Oct 28 2010.Don't dentists say that Calcium is good?

Morpheus
Registered User
Posts: 140
Joined: Mon Aug 17, 2009 12:43 pm
Location: Sydney, Australia

Thiis is seriously funny

Post by Morpheus » Tue Sep 06, 2011 8:59 am

I had stopped going for early morning walks because of the chemo and the cold, but this morning at 5am, I felt good, and it wasn’t too cold, so off I went. My balance isn’t too great, and at one point as I was getting to a jog I steadied myself by holding onto a car.

A second later a car pulls up next to me. It’s the cops.

What’s your name, and address? they ask.


What are you doing they continue?

Going for a walk, I reply


Why are you holding onto the car


At this point, I have to explain the whole brain tumour thing, and I do say that realise that they’re doing their job, but I can’t resist saying “I couldn’t steal this car, even if I wanted to.

Then the guys rea;lise that I’m not a car thief with an extraordinary imagination, and ask me how my recovery is going.

It really made my day. I love being treated like a normal suspicious looking person.

KellyJill27
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Posts: 12
Joined: Tue Feb 15, 2011 2:38 am
Location: Kentucky

Post by KellyJill27 » Wed Sep 07, 2011 6:07 am

LOL! Well that is good! That is all Kevin wants too, to be treated normal. Im ashamed to say I may be the worst person for that at times. I treat him like glass I guess. Its just Im so damn scared at times. One day though, I did say, "Get your own cup of water" and then I had guilt for the rest of the day.

I agree (about the advice stuff), I love to read about others especially how well they are doing, and I do know that everyone is different. I just really learned that lately since I joined a group online where a lot of wives of GBM husbands are on and Ive had some emails come in with all sorts of questions and I realized all I can really do is tell Kevin's story and encourage them to not give up hope.

Hope you are well, so glad to hear you walk. Every time Kevin asks me to walk with him I stop whatever Im doing and we go. No matter whats going on.

Take care- God bless
Kelly

Morpheus
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Posts: 140
Joined: Mon Aug 17, 2009 12:43 pm
Location: Sydney, Australia

Post by Morpheus » Wed Sep 07, 2011 11:53 am

Personally, I'm just relieved I didn't get the Rodney King treatment, that would have been hard to explain to my wife when I got home Seriously, Aussie cops are great!

Morpheus
Registered User
Posts: 140
Joined: Mon Aug 17, 2009 12:43 pm
Location: Sydney, Australia

Post by Morpheus » Sat Oct 01, 2011 10:23 am

No, not true, that I was questioned by North Sydney police about car rebirthing racket. though, if you're after late model prestige car with weld seam through the middle, just DM me

Tiff
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Posts: 3
Joined: Wed Nov 23, 2011 12:16 pm
Location: Sydney

Post by Tiff » Wed Nov 23, 2011 1:05 pm

hi, just thought Id share a good news story with you..

My hubby Craig was diagnosed with GBM G4, he was at RNS private and treated by Ray Cook Philip Yule and Helen Wheeler. Craig was 34 at the time..and Im so proud to say that he turned 40 in July! Woohooo!!
He is truly amazing!!
We'd only been together a year when he was diagnosed,and we made it through it all together and I think I may have been the happiest bride on the planet in Feb when we finally got married at Whale Beach!

Anyway - I wanted to share our story with you and hopefully brighten your day a little bit.

big hugs to you and your family :)

stacy
Registered User
Posts: 138
Joined: Mon Sep 15, 2008 11:43 am
Location: Elands NSW

Post by stacy » Tue Feb 21, 2012 12:14 pm

Hi John,
Just wondering how you are going, i havent really been on for ages, Im doing great, finally have pain under control due to a wonderfull pain specialist that actually gives a shit! Hope to see you at this yrs seminar, and yes i still smoke,,,so you know where to find me lol

Regards Stacy

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