Lyn - my story - GBM IV

Personal stories from survivors
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kenobewan
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Joined: Mon Mar 10, 2008 4:03 pm
Location: Australia

Re: Lyn - my story - GBM IV

Post by kenobewan » Sat Aug 23, 2014 10:13 am

Hi Lyn

How are travelling? Well I hope. We are enjoying your journey :-)

Ken

lyn
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Joined: Wed Aug 26, 2009 11:55 am
Location: Melbourne, Australia

Re: Lyn - my story - GBM IV

Post by lyn » Wed Sep 03, 2014 9:52 am

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My latest MRI August 2014 still shows the tumour still be stable however I have an abnormal cluster of blood vessels on the other side of my brain called a cavernoma which may bleed and cause symptoms very similar to recurrent tumour. So if things change I wont know where it's coming from. Plan is to continue monitoring. They want to push out scans to every 8 months but I would prefer to stay on 6 monthly.

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kenobewan
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Posts: 18130
Joined: Mon Mar 10, 2008 4:03 pm
Location: Australia

Re: Lyn - my story - GBM IV

Post by kenobewan » Thu Sep 04, 2014 11:01 am

Understood I would want the same :-).

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