30pls years later....

Personal stories from survivors
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30pls years later....

Post by Gliomadude » Tue Mar 15, 2011 2:17 pm

I am really happy to join this group! In 1974, I was 11 years old and diagnosed with an optic pathway glioma. I had radiation treatments and I'm here to write about it. Now I am a teacher, third grade, and I have a wonderful family. All went quite well until 2 years ago when I started having an annoying tremor in my left arm/hand. Now I have some other symptoms to accompany themor (balance issues, walking trouble etc.) it turns out that some really late onset radiation trouble has set in where the tumor was. My onc is fabulous and he tried some Avastin as a treatment. It only helped marginally. At this time, we are looking into new meds for my tremor and possibly an exploration into deep brain stimulation. Like I said, I love being here and would like to talk to anybody dealing with a brain tumor...let's face it....we're kind of a unique group, ya know. Regards, Tony

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Post by kenobewan » Wed Mar 16, 2011 1:16 pm

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Last edited by kenobewan on Thu Mar 17, 2011 4:20 pm, edited 1 time in total.

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Post by Morpheus » Thu Mar 17, 2011 1:13 pm

I'm not an oncologist but unsure why they thought avastin would work if there was no regrowth. From my research, I believe that you would get better results out of antioxidants, omega 3's and exercise.

Tony, please be aware that Ken does not have any medical qualifications, he just likes to log on here and scare the shit out people (I've also been one of his victims).

My radiation oncologist is Dr Michael Back at RNS, and we discussed this very matter a couple weeks back. Avastin is used to treat radiation damage, so the fact your oncologist tried Avastin, doesn't mean there's any live there.

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