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 Post subject: brain stem tumor
PostPosted: Sun Feb 26, 2012 7:33 am 
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Joined: Mon Jan 23, 2012 6:56 am
Posts: 7
Location: Modena, Italy
anybody with a brain stem tumor? would love to hear your story.. aaìm aìyoung mother of 4 in modena, italy... in the middle of fighting one, am inb a wheelchair am positive
x


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PostPosted: Thu Jun 28, 2012 11:35 pm 
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Location: Ohio, United States
Hi, my name is Trisha. I was diagnosed in July of 2007 with a malignant brain stem tumor. It was taking up 3/4 of my brain stem. I am responding to your post to let you know there is hope. I was given just a few weeks to live and the doctors gave us no hope. I lost feeling in the entire right side of my body and was beginning to lose sensation in the left side. They would not do surgery, radiation or chemotherapy due to the size and location of the mass. Upon seeing the oncologist I was told that I should face the fact that I was dying and that it was only matter of a few weeks. However, being the strong willed stubborn person I am; I refused to hear those words. I told the doctor that I wasn't dying that I believed God would save me. He got upset and left the room, when he returned his attitude had changed and he decided to call the neurosurgeon and take my case back to the tumor board. They had already turned down my surgery twice before this, however he felt that they may be able to at least drain the cyst that surrounded the tumor and by doing so it would give me more time.
I had surgery on August 31, 2007 with a 2% chance of survival and was expected to have significant neurological damage if I made it. I went in on a Friday and was released from the hospital that following Monday. God is good, he is so very awesome! Before surgery I prayed to him to just give me the chance to live for my children; I didn't care if I could walk, talk or even see. I just wanted to be here in some way, to guide them through life. I have been blessed. I have very little residual effect that is visible, I have issues with pain in my neck and cannot do any heavy lifting etc. I have some memory loss but thats normal and I have neurological damage that causes me to tire easily. With only 2% chance I would say the surgeons did an excellent job. I dont believe I would have made it without God by my side guiding every movement of their hands. My neurosurgeon even told me it was a miracle. That he doesn't know how it happened because they can't usually touch any part of the brain stem without doing significant damage and he removed part of my brain stem that the tumor had damaged. So I tell you this in great faith, take God with you and believe in his power because everything is possible with him by your side.
Remember, God is good and through faith even that as small as a tiny breath of air can move mountains. Give this burden to God and truly live in belief that you will survive. He will show mercy upon you and your family. You have a purpose, God gave you life for a reason. Fulfill that purpose and believe he will make miracles happen in your life.

Believe....in his power, turn your worries into faith.

It is through Jesus that strength will fill the voids in your body. Gods blessing will fill your life when you have faith in your heart, mind & soul.


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PostPosted: Thu Jan 10, 2013 9:24 am 
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Joined: Mon Dec 24, 2012 1:14 pm
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Location: Syd, AUS
TrishaWard wrote:
Hi, my name is Trisha. I was diagnosed in July of 2007 with a malignant brain stem tumor. It was taking up 3/4 of my brain stem. I am responding to your post to let you know there is hope. I was given just a few weeks to live and the doctors gave us no hope. I lost feeling in the entire right side of my body and was beginning to lose sensation in the left side. They would not do surgery, radiation or chemotherapy due to the size and location of the mass. Upon seeing the oncologist I was told that I should face the fact that I was dying and that it was only matter of a few weeks. However, being the strong willed stubborn person I am; I refused to hear those words. I told the doctor that I wasn't dying that I believed God would save me. He got upset and left the room, when he returned his attitude had changed and he decided to call the neurosurgeon and take my case back to the tumor board. They had already turned down my surgery twice before this, however he felt that they may be able to at least drain the cyst that surrounded the tumor and by doing so it would give me more time.
I had surgery on August 31, 2007 with a 2% chance of survival and was expected to have significant neurological damage if I made it. I went in on a Friday and was released from the hospital that following Monday. God is good, he is so very awesome! Before surgery I prayed to him to just give me the chance to live for my children; I didn't care if I could walk, talk or even see. I just wanted to be here in some way, to guide them through life. I have been blessed. I have very little residual effect that is visible, I have issues with pain in my neck and cannot do any heavy lifting etc. I have some memory loss but thats normal and I have neurological damage that causes me to tire easily. With only 2% chance I would say the surgeons did an excellent job. I dont believe I would have made it without God by my side guiding every movement of their hands. My neurosurgeon even told me it was a miracle. That he doesn't know how it happened because they can't usually touch any part of the brain stem without doing significant damage and he removed part of my brain stem that the tumor had damaged. So I tell you this in great faith, take God with you and believe in his power because everything is possible with him by your side.
Remember, God is good and through faith even that as small as a tiny breath of air can move mountains. Give this burden to God and truly live in belief that you will survive. He will show mercy upon you and your family. You have a purpose, God gave you life for a reason. Fulfill that purpose and believe he will make miracles happen in your life.

Believe....in his power, turn your worries into faith.

It is through Jesus that strength will fill the voids in your body. Gods blessing will fill your life when you have faith in your heart, mind & soul.


Truly inspiring Trisha. Thank you for sharing.

They have given my partner a similar percentage. I am terrified of a bad result for him. :'(


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