Brain Tumour Survivor

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PostPosted: Sun Feb 24, 2008 2:07 pm 
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Joined: Tue May 02, 2006 3:33 pm
Posts: 177
Location: elliott heads, QLD
Hi everyone, Just a quick update on our daughter who was diagnosed with GBM in Jan. 2006 she had tumor debulked and recovered well after surgery, she then had 6 weeks of Rad. and 18 months of chemo.
The extra 6 months was a battle to get for her as the government would only allow 12 months of chemo. But when I told them I would contact the media again they decided to give her the chemo for another 6 months.
She has just passed the 2 year mark of her initial diagnoses and her latest MRI done last friday (22 Feb. 2008) showed no visible signs of tumor.
To say we were over the moon with happiness is an undrstatement. She has now returned to work full time and does not need another MRI for 6 months.
I believe with all the support, medical intervention and her so positive outlook on life has made this all possible. We will never give up the fight.
So to all remain positive and take care


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PostPosted: Mon Feb 25, 2008 2:53 am 
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Joined: Tue Jul 19, 2005 10:12 pm
Posts: 260
Location: Melbourne
Such great news, I am so glad to hear it and know that there will be many more anniversaries to come. Successes like yours certainly shine like a beacon and give so much hope to all on the journey.
Cheers,
Ross.


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PostPosted: Mon Feb 25, 2008 7:35 am 
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Joined: Sun Apr 16, 2006 3:57 pm
Posts: 40
Location: Wellington, NZ
Hi femme

Great to hear Nicole continues to do well - long may it continue.

Lynda has been having headaches for the past 2 weeks but they have been intermittent and not too severe. We are hoping that they are hormonal headaches as she has also been showing symptoms of peri-menopause, such as hot flushes and irregular periods. We have booked in an MRI just to make sure. She is still on metronomic Temodal and all her supplements.

Chris
Wellington, NZ
h/o Lynda, 43, dx GBM IV (left posterior frontal lobe) in Mar 2006
proud p/o Cassandra (15), Nathan (12)
9 Mar 2006 resection
14 Mar 2006 pathology confirmed giant cell glioblastoma
18 Apr - 30 May 2006 30 x 2Gy fractions radiation plus daily Temodal @
75mg/m2
26 Jun 2006 1st cycle adjuvant Temodal on 5/23 schedule @ 150mg/m2
20 Jul 2006 first MRI after radiotherapy, result inconclusive
24 Jul 2006 2nd cycle adjuvant Temodal on 5/23 schedule @ 200mg/m2
21 Aug 2006 2 week delay in treatment due to low platelet count
4 Sep 2006 3rd cycle of Temodal on 5/23 schedule @ 150mg/m2
2 Oct 2006 4th cycle of Temodal on 5/23 schedule @ 150mg/m2
30 Oct 2006 5th cycle of Temodal on 5/23 schedule @ 150mg/m2
27 Nov 2006 6th cycle of Temodal on 5/23 schedule @ 150mg/m2
27 Nov 2006 MRI stable
8 Jan 2007 Started daily metronomic Temodal @ 40mg/m2 plus celecoxib
(now in the 14th cycle)
26 Apr 2007 MRI stable
5 Sep 2007 MRI stable


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 Post subject: Re: Your daughter
PostPosted: Wed Feb 27, 2008 11:23 am 
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Joined: Thu Oct 11, 2007 3:28 pm
Posts: 130
Location: Brisbane, Australia
Hi Femme
Fantastic news for you all after the recent MRI! I am so very happy & you must all be sooo relieved.
I have been reading your story & updates & your "courage" & "strength" has been inspirational to say the least.
Best wishes,
Angie.


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