Brain Tumour Survivor

yesterday i started 3rd cycle of temadol 300 mg for 5 days. all ok, i have spoken to my docter why t5he side effects are so strong, its on brain stem (see profile) and infiammated from radiotherapy 7 months now with only worsening... full moon faca and belly is enourmous and i sleep poor,y.... i take 8 mg at nine in the morning and am decreasing to 2 m,g in afternoon. my face is completely contracted and my left side paralised nervewise. does anyone recognise my story?
how did you solve this? my doc wants to cut down cortison so tomorrow mri to see if tumour or infiammation. my face is terrible all blocked and 1 super crossed eye! cannot see well aND TYPE slowly,
greetz from a white, wintery, snowy minus 13 degrees celcius italy
claire

I believe that nearly everyone here who has treatment has had cortisone.

Even though I was lucky enough to go off of it after a few days, I still have muscle wastage. The sooner you doctor can cut it down the better IMO.

Unfortunately the treatment is part of the reality of the disease. Hopefully they can reduce the cortisone and with it the side effects. All the best!

are you the only one that writes or am i doing something wrong?

I'm not the only one who posts - just the most frequent :).

The type of question you are asking is essentially a medical question I am unqualified to answer.

I think it comes down to what this site is for. Patients, survivors and their carers can post for support and information. You'll notice that I post a lot of information articles in the research section.

Maybe do a site search on the information you seek?

hi clairevtg, hope things are o.k. My experience with dexamethasone is similar but not as severe as yours, but I have to take them to control tumour growth, plus epillum which just makes things worse, but that's what I need to do according to my care team. I hope things improve for you so that you can cope better with your family routine, my typing to is poor, i just slow down and correct a lot, not the end of the world. I do get embarrassed in public, due to slowness and poor balance and shakiness( hard to count money plus huge scar on forehead from surgery plus moon face)