Search found 18 matches

by jlynch57
Fri Dec 12, 2008 4:06 am
Forum: General treatment discussion
Topic: GBM returns
Replies: 3
Views: 5117

GBM returns

Andrew got the results of his MRI scan yesterday and it was not good. (This is after standard surgery/radiation and temolozide)The tumour has regrown and has spread into the frontal lobe - from the temporal lobe - which helps to explain his confusion/ memory problems/slightly starnge behaviour etc. ...
by jlynch57
Mon Dec 08, 2008 3:53 am
Forum: General treatment discussion
Topic: Advice needed re memory loss and confusion
Replies: 2
Views: 4555

Advice needed re memory loss and confusion

My husband Andrew has just finished his last 5/28 day Temolozide regime (after surgery/radiation etc) In the last week he has become increasingly confused. Memory loss, thinking people are there who are not, thinking someone is someone else etc. I have taken him to our doctor who has done urgent blo...
by jlynch57
Tue Nov 18, 2008 3:45 am
Forum: General treatment discussion
Topic: What next?
Replies: 1
Views: 4030

What next?

It has been a long year but Andrew has only one more 5/23 Temolozide treatment left. He is doing very well and looking good. In fact he has gone to visit one of his brothers in Tahiti and we are visiting our youngest son in USA in January. We are due to see our medical oncologist late December and h...
by jlynch57
Wed Jun 11, 2008 4:08 am
Forum: General treatment discussion
Topic: Temolozide Regime after radiation
Replies: 16
Views: 15551

Hello everyone Andrew has now finished radiation and is having a much needed break from temolozide for a month before starting the 5/23 day regime for 6 months. After that we will work with our medical oncologist on the next plan of attack. He is prepared to prescribe continued temolozide - be it me...
by jlynch57
Tue May 27, 2008 4:02 am
Forum: General treatment discussion
Topic: Temolozide Regime after radiation
Replies: 16
Views: 15551

Andrew continues to cope well with the radiation and temolozide and with two weeks to go is feeling excited about finishing the radiation. I have continued to search for the " after standard" treatment options (which will be in about 6 months) and have made some progress in finding out abo...
by jlynch57
Sat May 24, 2008 4:35 am
Forum: Existing protocols
Topic: Metronomic Temozolomide
Replies: 17
Views: 48568

I have wriiten about temolozide regimes after radiation in General Treatment and am interested in your progress with daily temolozide. Have you had any progress?
by jlynch57
Sat May 24, 2008 4:35 am
Forum: Existing protocols
Topic: Metronomic Temozolomide
Replies: 17
Views: 48568

I have wriiten about temolozide regimes after radiation in General Treatment and am interested in your progress with daily temolozide. Have you had any progress?
by jlynch57
Sat May 24, 2008 4:20 am
Forum: General treatment discussion
Topic: Temolozide Regime after radiation
Replies: 16
Views: 15551

Thank-you so much for your replies. They are very helpful as are all the discussions on this forum. We don't have a neuro-oncologist here in Palmerston North, NZ and as far as I can find out we don't seem to have one in NZ. We will however talk to our medical oncologist who does seem to be open to s...
by jlynch57
Fri May 23, 2008 4:34 am
Forum: General treatment discussion
Topic: Temolozide Regime after radiation
Replies: 16
Views: 15551

Temolozide Regime after radiation

My husband, Andrew is four weeks through concurrent radiation and temolozide for GBM. Tired but coping well although not eating much - metallic taste and hair loss/ redmess appearing, but blood count good and no other side-effects. He has two weeks to go then my understanding is the standard 5 days ...
by jlynch57
Fri Apr 25, 2008 3:40 pm
Forum: General treatment discussion
Topic: Avastin and treatment options
Replies: 14
Views: 10442

Thanks to everyone for your kind thoughts and words. We had a nice break ( very little medical talk) and Andrew and I both feel much more settled and ready to undertake the next stage of treatment.
Jill
by jlynch57
Wed Apr 23, 2008 3:32 am
Forum: General treatment discussion
Topic: Avastin and treatment options
Replies: 14
Views: 10442

Hi Ross We had an excellent meeting with a private medical oncologist yesterday and we are happy. Andrew will start treatment on Monday ( after a base-line scan) with radiation and temolozide. Avastin and other drugs will be added if needed(i.e. if Andrew doesn't respond). He is also in contact with...
by jlynch57
Tue Apr 22, 2008 11:47 am
Forum: General treatment discussion
Topic: Avastin and treatment options
Replies: 14
Views: 10442

Thanks Ross I was also wondering about a scan beofre radiation starts - Andrew had one scan before the operation and one post-op (which they haven't sent up to where we live) but that was 5 weeks ago and if the debulking was only "moderate" then won't the tumour be growing. I asked how the...
by jlynch57
Tue Apr 22, 2008 4:54 am
Forum: General treatment discussion
Topic: Avastin and treatment options
Replies: 14
Views: 10442

You are correct about us having a reciprocal medical arrangement but only for things of a more urgent nature "Medical treatment relates to public health services, maternity services and pharmaceutical benefits. Generally, any urgent public hospital admission or referral to a public hospital spe...
by jlynch57
Mon Apr 21, 2008 6:31 pm
Forum: General treatment discussion
Topic: Avastin and treatment options
Replies: 14
Views: 10442

Thank-you so much Bronwyn that is a wonderful help. We are seeing a medical oncologist tomorrow (as well as our radio-oncolgist we saw today) and Andrew is due to start radiation and temolozide on Monday. We are struggling to do what is best and I am still keen to get a second opinion but time is sh...
by jlynch57
Sun Apr 20, 2008 3:10 pm
Forum: General treatment discussion
Topic: Avastin and treatment options
Replies: 14
Views: 10442

Hi my husband Andrew has had surgery for a GBM and is due to start radiation and temdoar here in New Zealand in a week. We have read about Avastin and are considering coming to Australia for a second opinion on treatment options. Who should we go and see? Time is short but we want to start off on th...