Ganglioglioma in Infant??

General discussion including use and side effects of various medication/therapies, and "what do I do now?"
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kjones
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Joined: Tue Jun 18, 2013 12:42 am

Ganglioglioma in Infant??

Post by kjones » Tue Jun 18, 2013 10:42 pm

My daughter is 18 months old. 3 months ago when she was 15 months old she was diagnosed with a Ganglioglioma Grade I in her left temporal lobe. She has surgery and got 90% of it removed. Right now I am told by St Jude that they want to just sit and watch it from now on. I trust the Doctors but I am scared that it will either grow into a more aggressive Grade or grow bigger? They told me there is a chance of it growing bigger and there is a chance of it not growing at all? I just need some answers!!

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